It is amazing how much has happened with our little family in the past year. Almost as amazing as how fast it has gone by.
Just the other day, April 14th, marked one year ago that I first saw Kylie doing something that made me think something is definitely going on...something we need to look into....something much more serious than we could have ever fathomed...something that quickly turned our lives upside down.
On this day, April 17th, marks the day that we received Kylie's devastating diagnosis of Infantile Spasms. Here's a look back at when we first got the news. I have looked back at these old posts a few times, and we have really come so far as a family. We didn't do it alone...He was there with us every step, and we leaned into Him as He carried us all through. He is so very Amazing, more than we had ever known.
I was trying to compile a bunch of photos from the past year, and it was much tougher than I thought it would be. Seeing so many pics of Kylie and her inflated cheeks from the meds, and how her face broke out so much...I know that is all so superficial, and we never saw her that way...she was still so happy, so much our little girl. It is just hard because it takes you back to where we were, and all that our precious little girl went through. She missed out on so many things, and we lost time with our princess as the meds took parts of her away from us at times.
She is truly an Amazing little girl and I can never say enough how blessed we are that He chose us as her parents. We are truly the lucky ones here :) She blows us away all the time with how great she has done, how smart she is, how silly she can be, how strong she is, and how beautiful she is. There isn't anything we wouldn't do for her. She is everything to us, and she is our little miracle!
I feel like this is so much more I need to say or should say, but it's kinda hard to feel much more right now, as we reflect on the past year. Bottom line is pretty simple, we have an Awesome little girl and she never ceases to amaze us. Words can not really describe how much love we have for her and how proud we are of all that she has overcome.
Onto the slideshow. Below you will find a slideshow of pictures from the past year and I found such a beautiful song to go with it. It's called Amazing, and it is so very true. I just put pics from April 2009 to December 2009. I figured 2010 is a new year and new beginning for us all, and we are doing all we can to move forward and embrace every moment.
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4 comments:
I hope one day you can look back and this will just be a small blip in Kylie's amazing life.
I have the same hopes too. She is just so very Amazing, that I can't help but have such big dreams for her :)
I hate going back there...to the day Sophie was diagnosis. And the ACTH pictures...ugh...those are just horrible. But as you know, Kylie has come so far and I have big hopes and dreams for her too. Especially since she has a wonderful mommy and daddy to guide her through the way!
Kylie really has come so far and it makes me so happy and sad all in one. Happy to see how great she is doing and sad that she has had to work so hard. We are very proud of her..she is everything to us!
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