Tuesday, September 25, 2012

Scholarship Fundraising Event

Hello everyone!  You may have noticed the beautiful pic of Kylie just to the right of this post.  Well, if you click on it or simply click here....it will take you to the page I created for Team Kylie.  Every year Kylie's school, Lee Ann Britain Infant Development Center, has one of their biggest fundraising events for the scholarship program at the school.  You see, the scholarship program allows families to send their children to this incredible school where they can receive therapies and have all the right professionals (OT, PT, ST, etc) by their side as they attend school for a much more affordable cost.  Kylie is a scholarship recipient, as are the majority of children that attend her school. 

My hopes of creating this page is to bring more awareness to the Lee Ann Britain Infant Development Center, as well as help raise money for the very program that has afforded us to send Kylie to their school. 

If you are interested in making a donation to Team Kylie, remember you can just click here to do that.  Oh, and there is an added bonus if we reach our goal.  Since the time to donate ends in November, which happens to be epilepsy awareness month...I will dye my hair purple!  I have already confirmed a stylist to do the job, so we just need your help in reaching our goal.   No, it won't be some crazy clown hair, but something more like this.  So let's reach that goal to make my hair purple for Epilepsy Awareness Month in November!

Tuesday, September 18, 2012

Let freedom ring

I'm guessing I was taking pics of something or another, and to my surprise Kylie asked me to take a couple of her.  She is not one to like pictures, and will often try to escape or not smile.  So here are a couple of her being her silly self.
Fish face
Striking a pose
Not sure how well you can see this, but we were practicing writing her name one day, so I had to take a pic of the board and I wouldn't erase it...it was just too cute and she did a great job! 

Those of you that are long time followers may know that the 4th of July is a big day for us....it marked the first day we went out in public with Kylie after she was off the ACTH for her IS.  If you are new to this blog, the ACTH greatly compromised her immune system, so we had to isolate Kylie for the 9 wks she was on the meds and a few there after for her immune system to build back up. 
Here is a little collage of sorts I created to capture the last few years of Kylie at the Lenexa 4th of July Parade.
Below are some pics of her from the parade this past July 2012:
Literally holding on to the edge of her seat as she waits for the parade to begin!

Checking to see if the parade is coming yet

There is a family that is always around the spot we sit at every year, and they gave Kylie a tattoo...she loved it!
Kylie with her Dadda
I think the parade is starting!
Our church was in the parade, and we like to march in the other parades with them, but this one is ours to watch.  Kylie's favorite girl was in the parade, and she came by to say hi!  Kylie was excited to give her friend a balloon and some candy for her birthday...yep she marched in the parade on her birthday :)

Enjoy some of the candy that was tossed to her during the parade.
All in all, I say she had a great time celebrating the 4th and her own freedom too :)

To my surprise one day, I was awakened by Kylie screaming.  I was worried about what I would find when I opened her door and this was it...she got her leg stuck in her bed.  I could not get it out and I thought about calling the fire department, but I figured that may traumatize her even more, so...

... I called Matt and he came home from work and had to cut the bed to get her leg out. 

Kylie was coloring some pictures one day, and something about her smile and how much fun she was having sent me to grab the camera.  So here you get some more pics of Kylie...you can never have too many :)

I think this one might be my fave!

So silly, and farewell to Ohio

Pretty amazing to think I am finally finishing up with the posts from Ohio...I know, I think I am further behind than usual.  Oh well, that's what you get with a 3 yr old :)
Kylie wanted to swim a bit at my parents house while we were there.  So we filled up her little pool and in she went. 
I'm not sure how this started, but I think Kylie realized she left a booty print on the porch from her wet bathing suit. 
Oh yes, look at that proud face from all the booty tracks she left behind...takes after her dadda with being silly.
Love this pic of the moment shared between her and my mom.

Yep, more silly moments with Kylie.
So sad that we will be leaving soon.
And away she goes!
I didn't realize this was all that was left of the Ohio posts, but here it is.  It was a good trip all in all, and a great visit with her neuro at the Cleveland Clinic.  I know Kylie had lots of fun as we were busy most days we were there. 

Tuesday, September 11, 2012

Park, mini golf, and bowling oh my! (Ohio Trip)

It was a goal of mine to get Kylie to go to the park that I went to growing up.  We try to take her there each time we visit, so it was a must!  I called the municipal building earlier in the week to find out what activities were going on, so we could pick a good day to go.  I was hoping to meet up with some old friends and their kiddos, but we were running behind and it just didn't work out : (
Once we made it to the park, they had already begun the tie dye deal that was going on.  We hopped right in and got on our fancy gloves to get to work.  The teen that helped us told us that it is all about the twist, to achieving the best tie dye effect.  So here we are twisting away.
This is how most of the pics I take come out too...she either turns away or runs away...so I just look cheesy smiling :)
Now it's time to add some color.  Those of you that know Kylie will know that she only wanted one color...her favorite...blue

Once we were all done, we bagged up or shirt and headed to play at the park!
I always thought those slides were so tall, and I bet she does too!

This merry go round has been there forever...so glad she got to play on it!
Now it was time to head into the pavilion to paint...

...you guessed it...blue! 


A bit more climbing around before we headed for some DQ.

So I have to tell you about these crunchy sprinkles that do not exist at any DQ around here.  They are delicious, and I asked if I could buy some.  I told the story that I used to live there, and we can't get them back in Kansas.  They called the owner...he had them interrogate a bit and find out my name...I also tossed in that my brother worked at the gas station right next store.  Score!  He let me buy this 6 lb carton...pretty sure it will stay in our fridge for a long time before it is gone.  Love them!


Sometime later that evening after some dinner and a nap, we went to play some miniature golf.  Here is Matt giving Kylie a lesson...so cute!

That would be Uncle Joey on his phone while he played..multitasking at its finest!

Kylie doing a good job to stay off the green while we played...for the moment of course :)

You can't play miniature golf without getting some ice cream afterwards.  The place is called Buster's and they also have ice cream..can't refuse.  I think this is the last year that we were able to get by with Kylie getting a free cone for being little...okay so she was like just over 40 inches, but they were okay with that. 
Here is her there last year...so little!

It must have been the next day or so, but we met up with my cousin and her little girl to do some bowling and let the girls play together.

I think it is safe to say that they had a good time...they were so cute together!

Lastly, that night we met up with my good friend Karen and her hubby for dinner.  I have been friends with Karen as long as I can remember..at least since I started kindergarten or so.  We had so much fun, and Kylie loved her and as you can see...lots of smiles after we ate dinner. 


One more cute pic of Kylie...just because :)

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