Saturday, August 6, 2011

Rain drops...and tear drops

Okay, so I am pretty tired and was planning to go to bed, but I just keep thinking about today. We had a garage sale with our neighbors today and it started to rain a bit....of course, right? Anyhow, our neighbor (Jessica) started singing the Rain Drop song:



What if all the rain drops
were lemon drops and gum drops
Oh what a rain that would be....


Anyhow, Kylie looked at me and said "Where I hear that?" I told her that Miss Shannon (her OT) sang it to her at therapy this past week. Kylie is one to always try to link things together...I swear she has this giant puzzle in her little head of all the things she knows and where they all fit :)







*I took this pic just before dinner this evening



After we all rested and showered up, we went over to our neighbors for dinner and to celebrate our successful garage sale. Jessica started singing the song again...Kylie loves it and even began requesting it. Well, the next part of the song goes something like:



We all stand outside
with our mouths open wide
Going ahh ahh aah ahh ahh ahh ahh ahh ahh ahh



Well...Kylie doesn't like doing silly things like that or anything where someone might watch her...it makes her pretty well stressed or overly giddy. But she really wanted to do it, and having any sort of audience is tough for her, especially when she wants to try something or we are trying to get her to try something for the first time.



So she ran in their sunroom and said, "I do it in here so momma and dadda can't see me." This is where the tear drop part of the blog post title comes in.



I was so proud of her for trying it...for being smart enough to find a comfortable place to singing, and I felt sad that it is hard for her to do....so yeah, I started to cry.



It was mainly coupled with the fact that we have been seeing lots of crazy head stuff in the past couple of days, so it makes for a weepy momma and a stomach twisted dadda (though he would never tell you).



We know that her head going way back doesn't hurt her, but it scares us and makes us worry. Worry that she may lose her balance and fall, and just plain old worry about her.



I guess one of my biggest things about it all, is that it stops us from enjoying watching Kylie laugh and get all excited, because when we see her head go back so far...it just makes us feel sick and worry, and I don't like that these head things are getting in the way of us watching our child be joyful.



I don't know if it was before or after my tears, but I tried to get some video of the singing. Sorry, the footage isn't the greatest, but it is cute too!



*You may need to turn your volume up a bit







4 comments:

Rochelle said...

Love the singing and bless your momma (& daddy's hearts) I know it is so hard to watch our children have any difficulties.
Just remember God made her perfect just as she is.
Hugs my friend

MJStump said...

I know Rochelle, Kylie is so very amazing and perfect for us!

I am just in awe at how great God is and the way He created her for us...everything she has taught me is exactly what I have needed in my life!

The Adventures of Bobbie and Zach said...

I'm sorry that the worry/concern are a constant background in your life. I know what it's like to want to just enjoy something without it being bittersweet...luckily you have an amazingly beautiful daughter to remind you about what is good! Hope to see you on Thursday :)
Bobbie

MJStump said...

You are so right Bobbie, Kylie reminds us of all the goodness.

Can't wait to see you guys tomorrow!

 

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