So please please pray that the odd head stuff that we have been seeing for over a month now happens a few times during the 24hrs that she is hooked up. That way we can say okay, that is what we are concerned about and they can tell us if there was any abnormal brain activity during that time. We need to know what this stuff is or isn't. There are some days when Kylie does not do it at all, and other days where we see it a handful of times...so far today, nothing.
K, I need to get back to figuring out what we need, what can't be packed until after bedtime tonight, and then after morning time tomorrow.
Prayers are appreciated....prayers for Kylie to be so brave and strong, and prayers for mama and dada to be strong for Kylie and each other.
1 comment:
Good luck today. I hope you are able to capture what Kylie is doing so you can figure out what is going on. Keep us posted!
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