All things Kylie...and more

So I thought once I did the last post with Halloween and such, that I had completed all things from October...not so much :) This post is going to be a mix of all sorts of things and stuff we did in October.






Not sure what this was from...nothing more than a cute pic :)

Followed by another cute one...silly laugh this time :)

Matt's mom has a beautiful rocking horse in her house upstairs. We can see it from the living below and have visited it many times. This was the first time Kylie wanted to sit on it.

I'm pretty sure she likes it! She has been on it several times since...yay, or no...yeehaw!

Just a pic of Kylie being silly at lunch time one day. She is silly just like Matt!

I decided that since Kylie was bringing home so many things from school, that we needed to display them in her playroom. So I got a strip of fabric and tacket it up like a clothes line of sorts, and we hang her pics on it. We change them out when she gets new ones....like every week :)

This was from another pumpkin patch place we went to, and I just thought this pic of Kylie holding Matt's hand was just so cute. So yes, some photo editing, and here you go.

We went to the park later that day...it was just too nice out not to. Kylie loves to climb and can get up just about anything she sees.

Coming down the slide!

Kylie went in for another hair cut. She did so great! Just put her in the jeep, and pop in a movie and she is good to go! It doesn't get much better than that!

All done after her haircut!

Every year in October (for the last couple of years), we have Infantile Spasms Awareness Week. This is a time that we try to draw awareness to the devastating form of epilepsy that Kylie was diagnosed with as a baby. One thing we like to do is wear purple to show our support for epilepsy. Here are some pics I got of Kylie that week sporting some purple.

Not only was she wearing purple, but she found some of my shoes and was walking around in them....she walks in them way better than I do :)

Oops...she slipped out of the shoes!

Holding my hand...love this!

Yep, she's a purple princess!

"Ohhhh mom, do you have to take another pic?" Yes, yes I do.

Some of our friends from church put a team together for the Step Up for Down's Syndrome Walk KC, and we went to show our support.

Yay for team "All For One, 21 For All!"

LC and Jace ready to get this walk a moving...love these guys, they are so cute!

Dariya...just loves those eyes of hers!

Dariya's sister Alayna was not able to make it. She was sick and in the hospital just the day before. We all walked for her too!

Boo!

Yes...it has been awhile, and I have gotten behind on blogging. Matt says to pick up the posts from here on out, but I can't...I gotta do Halloween and Kylie's birthday and everything in between and there after.


Here goes!


I know I did some pumpkin-y posts, and now we have Halloween! One night, Matt took Kylie with him to the store and just 2 minutes or so after they left...he called. He told me that he asked Kylie what she wanted to be for Halloween, and he wanted me to hear her say it. So while on the phone, he asks her what she wants to be. I hear her say something, and instantly thought that it just didn't make sense. So I suggested Tinkerbell, because it started with the same letter as the word that I thought I heard her say....nope.


Before I tell you (for those of you who don't know), here is a video of her telling us....yes, we had to record it because it is that unique :)






There was no convincing Kylie that she could be anything but a triangle for Halloween. If we suggested anything else or questioned what she wanted to be...she would totally melt down. It was almost like we were questioning who she was....a triangle. Oh and not just any triangle. She said she wanted to be a light blue triangle. After all, blue is her favorite color.


Here are the hand puppets I made for her friends in her Kindermusik class.

This was the first time she got to wear her costume...she did not want to wear it. Umm...as simple as it was, it was somewhat of a challenge to construct a triangle, or at least figure out the best supplies to use. We told her she could take the hat off, once all of her classmates arrived.

Hmm...I bet she is thinking that she can not believe she is really a triangle...her dream come true :)

She is starting to get nervous about going into the classroom...trying to hide.

Getting warmed up with some scarves.

Story time with Miss Miranda...she loves her so much!

Triangle Costume take 2: Next was trick or treat at her school. Here are the finger puppets I made for her classmates.

The kiddos waiting for all of their classmates to arrive, so they can get started...they are all so cute!

So much cuteness in one pic!

I swear it looks like they are all lined up for a mug shot..lol

On the hunt for some more candy.

She was kind of nervous at first, but then got the hang of it....she started checking the goods before taking something....going for the chocolate :)

Triangle Costume take 3: We went to visit Grandma Nancy at her work, and went trick or treating there too! The girl had tons of candy by the time it was all said and done with! She already had some practice and was doing great with saying trick or treat and thank you after a couple of stops...yay Kylie!

One of her first stops...trying to hide her face, but shortly after she had a run of the place and did fantastic!

Triangle Costume take 4: No pics, but we did go to Matt's work...it was his first day at his new job! Everyone was so nice, and it was a great way for Matt to re-meet people he had met earlier that morning. No one will ever forget him, especially after meeting his cute little blue triangle :)

Triangle Costume take 5: So what would good would a costume be if you can't ring doorbells and knock on doors. Kylie was a pro by the time Halloween night was here. She loved it too! By this time, she had already figured out that "okay, I have to interact with people, but they give me candy...usually chocolate, which I love." "I can do this."

She was so great, that we waited on the driveway or at the bottom of the steps, while she went to the door. It was soooo great to see this!

I love this...sucker in the mouth, and trucking on for more candy. She had us hold her sucker while she went to get more :)

I got a pic of our shadow holding her hands....love it!

Sew...where are all the blog posts?

Okay, so I know I have been far and few between on blog posts for quite a while...but I am trying to catch up, promise!

I must tell you what I have been doing with all of my time when Kylie is asleep...apparently it isn't blogging :) I have been sewing, and crafting and with that comes taking tons of pics, and then editing them, and posting them onto FB. I have recently created a FB page for all of the things I have been creating. Just click here and you can see it....oh, and you can become a fan too! My page is titled :

Why Mae Blossoms? Because Mae is Kylie's middle name, and well the Blossoms part is because she is just so darn amazing and beautiful, just like a blossoming little flower. I think the logo is so cute and just perfect! Matt's friend, Branden Hughes designed it for me last year, and I am finally starting to get things rolling for my little business of sorts.

I thought I would show you all what I have been creating. So just scroll on through to take a look. Hope you like!

Lots of Clothes

Accessories

Kids Play

Your Toddler Can Read

Ran to Home Depot this evening to see about a new toilet seat. Apparently they make full-size toilet seats with built in kiddo-size seats in the lid. Anyhow, Jody heard about these somewhere so we went to check them out. Exciting, I know.

Now, when we're out and about, Kylie will tell us when she sees a Wal-Mart, Target, Home Depot, etc. This is obviously just based on memorizing the logo. No big deal, right?

Well, tonight Jody and I were looking at this fancy, dual-use toilet seat when we hear Kylie talking behind us. I turn and asked her to tell me again, and she said "look, a Kohl's seat". When I looked at the label on the display, here's what I saw:

Amazing, right? While the font is similar, she picked out the KOHL and linked that back to Kohl's department store, which we frequent fairly regularly. We hadn't mentioned "Kohl's/Kohler" while there, and Kohl's certainly doesn't sell toilet seats (at least, I don't think so). After hearing it, Jody and I just kind of stared at each other for a second or two...smiling in disbelief. I asked Kylie to repeat and snapped a video with my phone:

I'm a little snowman

So last night, Kylie's school held a Christmas Program at a nearby church. Kylie was so excited to wear her pretty dress that Grandma Nancy got her. After getting her all dressed, she said "I look like Cinderella." Yes, a princess indeed!

Here is our princess putting on her shoes just before we left.

She's ready to go!

This was just a little bit after we arrived. Grandma Nancy and Frandma were there to see Kylie on her special night. Oh, and you may have noticed the wand. Kylie asked us before we left if princesses used wands...of course they do! So we let her bring.

Wondering who she will grant a wish with her wand.

She absolutely loved twirling, and showing Grandma Nancy and Frandma how her dress moves when she spins...too cute!

A brighter version of the pic above...loved them both and couldn't decide which one to post :)







This was the program for the night. They had 17 songs, and Kylie's class was #14 on the list.

Kylie was sitting with us the whole time and was doing really well. I do think that after the first song she realized what was going on. Each class would go up on stage and do their song...meaning, they had to really do this,and that she wanted nothing to do with that. After each song, she would say "all done" and that she wanted to go home.

Of course I immediately started to worry about how this was all going to turn out. I was such an emotional wreck to begin with...this being her first school program, she's getting so big, wondering how to go about this (do we disappear and let her teacher come snag her, do we take her up there, do we make eye contact or not).

One of my most guilty feelings was just being there and seeing so many families with children with disabilities and how we were all a part of it. I almost started to cry a few different times just being there...before my concerns about Kylie started seeping/weeping out.

Kylie spotted one of her classmates sitting up front with some other kids in the aisle, watching the kids up on stage. She really wanted to go over there, and with some nudging...she did it! She went over to the aisle...no longer attached to us...hooray for Kylie! So below is a pic of her just moments after she crept into the aisle to see her friend. She looked over with a little smirk..as if to say "look, I did it!"

Kylie got a little closer and closer to her friend...she didn't want to talk to her just wanted her friend to see her. It was so cute watching her move around until her friend saw her there. They both got so excited when they saw one another. It was so cute! In the pic below they were going back between admiring one another's dresses, and looking at their own dress as if to say "look at my pretty dress."

All done eyeing one another's fashion, and watching the show.

A song or two before it was time for Kylie's class to go up, I snuck over to her teacher and asked her if she would want to get Kylie, because we knew there was no way we could do it and have any chance of it working out. She said she was concerned about Kylie, and said she would have no problem doing that at all. Once it got time, another little one in Kylie's class was going by, so her teacher grabbed her and before she had a chance to get Kylie...she figured out what was about to happen. I then had to pick her up and kicked and screamed and just melted down in an instant. I got over to her teacher and told her that I did not know what to do. I started to pass her to her teacher (who Kylie loves), and she just wrapped her arms and legs around me so tight and screamed. I knew then that it was absolutely not going to happen. Her teacher said not to force it, so I melted right along with Kylie and we were both crying. Oh, what a mess...mother and daughter crying together and just wanting to be somewhere else.

I wanted so much to see Kylie up there singing her song that she had been practicing at school for weeks now. It was so much more than wanting to see her up there...wanting to see her be a part of something and not so terrified to do it, seeing the growth she has made...that we have made together , and building my hope that everything will be okay. It's just tough sometimes to see that your child is not where you want them to be in their development, and even though you may know it...it comes to life more when you see it before you. I know being up there is scary for anyone...I wouldn't like it much either, but the night had much more meaning than the stage...it flooded my mind with where we have been, where we are now and how we got here, and what lies before us.

I will try to get her to sing the song and record it...until then, here are the words:

I'm a little snowman

Short and fat.

Here are my buttons (pointing to their buttons),

Here is my hat (point to had on head).

When the sun comes out

I can not play.

I just slowly, melt away.