Purple Power Bowling!

Below is a picture Matt had snapped the day Kylie was diagnosed with IS.  I'm not sure, but I think it was right before we got the actual diagnosis.  At any rate, our lives were forever changed, and the color purple came to mean so much more for our family.

 

 

 

 

 

 

 

So we started the Purple Day celebration a bit early.  Kylie and I went to the mall, and they just so happened to have 2 slices of this yummy cookie cake left.  Since it was purple with some sparkly sprinkles, we knew it was meant for us!

 

Below are pictures that I was tagged in from some of my FB friends.  Love all the purpleness from our friends near and far!

 

 

 

 

When I arrived to pick Kylie up from school on Purple Day, some of our friends greeted us there to give each of us one of these:

 

 

 

 

 

Our friends were wearing some purple, and had a family member make Kylie and I matching rings and necklaces.  Such a thoughtful gesture, and we absolutely love wearing them! 

 

 

Miss Purple herself, was not about any pictures, but it is kinda cute to see that forced smile too :)

 

 

 

 

Love this one of her looking at her ring...just precious!

 

 

 

 

She was totally over having me take her picture so she laid down in hopes of me stopping...nope :)

 

 

 

We had two purple days, since Kylie attends two schools.  It also happens to be that her class was having a field trip to the bowling alley on Purple Day #2 for us.

 

 

 

Here is a pic of one of her friends from class wearing purple for Kylie!

 

I was so touched pretty much all the kids wore purple for Kylie and their moms did too!  It's such a heartwarming moment to see so many people supporting your child and family. 

Below you can see her getting on her shoes and getting ready to bowl!

 

Loving the friendships and purpleness!

 

We just love her friend here, and isn't he the cutest little man in purple!

 

 

I don't know if you all remember Kylie's bowling experience from last year, but it was tough on all of us.  She remembers everything, and was telling me about how last year was for her.  I acted surprised, and didn't bring much attention to it.  I just didn't want to put any pressure on her for this year's field trip.

This year was a new year for Kylie...she was so excited, and had no trouble at all.  She bowled by herself, had fun, smiled, and did lots of cheering for her friends!  It was such a victory for her and us.  It just reminds us how far she has come, and we couldn't be more proud!

Snack time is everyones favorite time! 

 

I tried to get a pic of Kylie and her teacher, and she was so hyped up from the day that she was not about to stop from being silly.  So silly she was, and always making us smile!

 

 

 

This wasn't the best one of the two of us together, but there is something about her sweet, and beautiful face that I could stare at forever.  Love this girl more than words can say!

 

This was just one to show my purple hair.  Kind of tough to get it in the light just right, but Kylie thought it was fun for her momma to have purple hair.

Yay, we got a good shot!

 

We went out to eat, with Kylie choosing where to go...and she was trying to tell Matt something.  Apparently she wanted his fully attention, and this is how she managed to do that...

Since Matt is rarely wanting his pic taken, I managed to get this one of them hand in hand. 

 

I really do love my ring and necklace, and they speak more to my heart than most could understand.  Hope is what we need to help us get through it all, and lots of faith that no matter what happens we can do this through Him.

Who do you wear Purple for?

We wear purple for Kylie...how about you?

Every year we try to see how many people we can get to wear purple for Kylie and all of her friends with Epilepsy, especially those that have shared the IS (Infantile Spasms) diagnosis.  Purple Day is coming up (Tuesday, March 26th), so start digging through your closets for something purple to wear for our girl!

Purple Day is a day to draw awareness to epilepsy, and what better way to do that than through these beautiful faces in the video below.  The video was made by a fellow IS momma, and I am sad to say that some of these sweet children have earned their angel wings since the video was made in November 2012. 

Please wear your purple for Kylie and send me your pics so I we can have a Purple Party on the blog! You can find my email by clicking on the profile or you can send them to me via FB. Thanks for your support and we look forward to seeing lots of Purple.

Mark it on your calendars, Tuesday, March 26th is Purple Day!

Here a Christmas, there a Christmas

Hooray, I am finally posting about Christmas, and that means both sides of the family will be very happy that I am posting this :)

 

 

So we totally surprised my family and went to Ohio for Christmas.  My dad knew we were coming, which meant the secret was super safe.  My mom had no idea, and it was quite fun to see her face when we walked in the house.

 

 

So onto some pics, because you know I like to take lots and lots of them :)

 

 

We have a few Christmas traditions in our little family of three that we had to take with us to Ohio.  First is below, Matt reading The Night Before Christmas book to Kylie.

 

Then there is the milk and cookies from Santa, on the same plate each year...oh and some carrots for the reindeer too.  As you can see the reindeer and Santa enjoyed their treats :)  Our other tradition is homemade cinnamon rolls, sorry somehow I did not get a pic of the deliciousness....probably too busy eating them!

I'm pretty sure this was Kylie opening up her gas station and train cars from Uncle Joey.  Perfect to go with the train that Santa got her!

 

Here she is opening the Rudolph fabric book I made her...yes, I enjoyed it more because of the labor of love :)

These are the jammies I made her...part of them anyhow.

 

 

Grandma Karen and Papa Joe must have a hotline to Santa...they got her the tracks to go with her train.

 

 

 

 

 

And the Strawberry Shortcake blanket I made her.

 

Digging way down deep into that stocking!

She was showing off her Monkey Hat from Aunt Jen...she wears it all the time too!

It goes perfect with her coat from Aunt Jen too...another thing she insists on wearing every day...she loves it!

Lots of silly socks from Aunt Jen too...she loves socks, the only kid ever to love such a thing :)

 

And a blue monkey, her favorite color...from her Aunt Jen!

 

Running over to give her Aunt Jen a big hug for all her presents.

 

Haha, so I was wanting to start a wager to see if the fire department would be called for deep frying the turkey or the fire pit..just kidding, I know they had it under control.  Matt and my dad had a good time working on the bird and keeping warm by the fire.

Oh yeah I almost forgot, Kylie got the Blue Crew package for Christmas too, and she is definitely one of the cutest Royals fans!

Matt sporting some pajama pants I made him.  The fabric is cars, since he loves to buy her hotwheels cars all the time...right now she has about 100 or just over that..crazy!

 

 

 

 

 

And now it is time for some fun in the snow! I love how she waddled with her snowpants on from Grandma Karen and Papa Joe.

 

Happy because she is about to chuck that snow at someone!

 

Can't play in the snow without making a snow angel.

 

 

 

 

 

This one is too cute...she is running away after she chucked the snowball at Matt. 

 

 

 

 

 

 

All sorts of rosey cheeks and waiting for some hot chocolate after she came in from the snow.

 

 She loved everything about Ohio and was asking when we are going back to see everyone when we were driving back to Kansas.

 

 

 

Speaking of Kansas, how about some more Christmas here.  She is the best helped and did such a great job passing out all of the presents to everyone. 

 

 

 

 

 

 

And here is where she began opening up everything.

 

As much as I tried to keep things separate to know what was from everyone, I totally could not remember.  This little lady was surely spoiled by everyone alike.

I'm pretty sure these are the paper bag puppets that her Grandma Nancy got her, and she absolutely loves them! 

 

 

 

 

 

 

Another favorite gift...chocolate from Frandma.  She loves her chocolate and we owe that to Frandma...a way to Kylie's heart for sure!

 

 

 

 

And the grand finale...a car for Kylie!

She loves her new ride, and it even has an radio in it!  My favorite is the remote that comes with it...I can drive her all around and she just giggles so much!

 

Kylie and Frandma enjoying their favorite...chocolate!  We found this cake at a restaurant and tracked down the bakery that supplies them, and ordered a couple (Chocolate Mousse Torte) Love them!