Saturday, April 25, 2009

Random Update

Well, we've obviously been home for a few days now - we left the hospital on Tuesday afternoon. The first shot at home - on Wednesday - didn't go well at all. However, we did find an angel of a nurse at our pediatrician's office that offered to let us come in for some help. We did that on Thursday, but went back to the at home route yesterday (Friday) and it went well.

We're scheduled for all kinds of upcoming appointments. Every Monday and Thursday we have to go to the pediatrician for blood pressure, poop (blood...TMI, I know) and weight checks, all of which are potential harmful side effects of the medicine. That'll be at 4:30 in the afternoon.

We got our follow up EEG bumped up from Tuesday, May 5th to this coming Monday (4/27). So, hopefully that will yield some good news. I'm not sure if we're keeping the 5/5 appointment. I guess a little background on why the appointment got moved up. We called the neurologist yesterday and told him that the spasms weren't really getting any better. So, he called back and moved us up.

So, please keep us in your prayers on Monday. We are hopeful that the EEG will come back with some improvement versus the first one.

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